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When We Move Forward Together, Anything Can Happen

/in /by Guest Blogger

This is a guest blog post by Mardra Sikora.

A few years ago, my son and I sat backstage during the Broadway Across America national tour performance of Mary Poppins. The cast sang, “Anything Can Happen, if You Let it,” and danced across the stage exuberantly pursuing their point. I believed them, because Marcus would soon be on stage singing right alongside them. This was in 2011 and the opportunity came from an auctioned event. Since then, his ambition to write his own musical and perform on stage has continued to grow. In fact after telling one actor at a community theater that he wanted to play the leading role, that actor reminded Marcus of the quote, “The greatest of journeys starts with a single step.”

The Next Step

MarcusMarcus keeps taking steps. His latest endeavors have netted a short play which is being produced this month at a local public high school. The show is called “Cassie Through the Closet Door.” The role of Cassie was inspired by an actress who Marcus worked with while participating in a project called the Art of Imagination. A program developed by our local chapter of The Arc, the Ollie Webb Center. Marcus has taken beginning acting classes through this program and hopes to move on to advance acting and then classes within the community next. These classes teach craft and understanding theater, but his innate talent is as a storyteller. Coming up next is the release of his children’s book entitled Black Day: The monster rock band, with a read along animated short to follow on DVD this fall.

Dreams Take a Village

There are still some who can’t believe what Marcus can achieve, but frankly Marcus doesn’t care what they think. That is perhaps one key to his continued ambition and potential for success. But it’s more than that, it’s also a community, a team effort. Ask any Olympian if they did it alone. There’s a reason award acceptance speeches are so long, the list of “Thank You’s” include many supporters within their community. Many people have to come together to teach, support, encourage, and enable anyone to reach their dreams.

Menschen cardMarcus also has some great role models breaking the social barriers. Connor Long, is one example of a young adult self-advocate who is following his acting aspirations. He’s already received accolades and awards for his role in the live action short Menschen. Which The Arc is sponsoring shows in cities across the country. The most recent list is at the end of this review, check back for updates. (Be sure to talk to your local arc to bring the show to your town.) Connor is busy with local theater at events and is also in production of his next film project, Learning to Drive, another example of a writer-director with a personal story to tell.

These two young men are just the tip of the iceberg, there are so many self-advocates taking steps to achieve their dreams. With their actions they are teaching communities, and because our communities are growing more inclusive, they continue to move forward. Let us all keep moving forward together, sharing, teaching, and learning that together, “Anything Can Happen, if You Let it!”

Bio: Mardra Sikora believes in the power of words and uses both fiction and non-fiction to advocate for and with her adult son Marcus. You can find her and Marcus on the blog Grown Ups and Downs, Facebook and Twitter as well as on various blog networks including The Huffington Post.

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March Is National Nutrition Month

/in /by The Arc

By Kerry Mauger, The Arc’s HealthMeet Team

March is National Developmental Disabilities Awareness month and it is also National Nutrition Month®. The Academy of Nutrition and Dietetics created an annual campaign to help educate and inform people all over the US about the importance of creating healthy eating habits, making more informed food choices and increasing physical activity. This is especially important for individuals living with an intellectual or developmental disability. It’s been shown that individuals with a disability have a higher prevalence for obesity, which can lead to diabetes, cardiovascular disease, high blood pressure and other preventable health issues.

Learning more about nutrition and what types of foods to eat can make a huge impact in your overall health. By teaching and using the MyPlate methodology, individuals can get a visual perspective of the types of foods and portions that they should be consuming daily. To help show different portion sizes that are appropriate for certain foods you can compare them to household items that the individual will be able to relate to. For example -knowing that a 3-4oz serving of chicken should be about the size of a deck of cards or half a cup of pasta is the size of a baseball will help to put portion sizes into perspective for future meals.

Small changes to the foods you consume can also make a significant imprint in your health over time – switching to skim milk from 2%, replacing sour cream with Greek yogurt, eating whole grain bread instead of white bread and controlling sodium intake are all very simple steps to take to making healthier eating habits. Many resources are available through The Arc’s HealthMeet project and their webinars that feature presentations by nutritionists, dietitians, nurses and more to help individuals to be more educated about the foods they chose, portion sizes and ways to improve fitness levels to help reduce obesity and many of its related preventable illnesses.

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Dancing Knows No Disability

/in /by The Arc

By Shannon Quinn, Guest Blogger

Shannon Quinn is a dancer and teacher at Dance Place, a nonprofit arts campus in Washington, DC. In April, her company, ReVision dance company will perform “Just Be” in honor of her father; the late Timothy J. Quinn. The April 27 performance includes a VIP reception with proceeds benefiting The Arc. Tim Quinn was Executive Director of The Arc of the Northern Chesapeake Region from 1990 to 2010. Tim was a visionary leader and advocate for people with disabilities, respected nationwide for his efforts. During his time with The Arc, his chapter was recognized for the quality of its services and commitment to personal empowerment and inclusion. And, Tim personally received the National Conference of Executives of The Arc 2009 Executive Excellence Award.

Growing up with my father, Tim Quinn, I was inspired from an early age to work with individuals with intellectual and developmental disabilities. I would travel every summer with my dad to The Arc conventions, and tag along when I could in his office at The Arc Northern Chesapeake Region. I was inspired by his kind heart and genuine interest in every person he came into contact with.

Teaching has always been a passion of mine, and since my father’s passing, I became more involved in teaching dance to children and adults with I/DD. I walk away from each class uplifted and focused on how individuals no matter what their abilities are, can be impacted by dance.

As my work with individuals with I/DD increased over the past two years, I had some serious thoughts about inclusion and how the word inclusion shouldn’t really even exist. Every human being has the right to live a fulfilled engaging life, no matter what their ability, and that should be a given. As an artist, I began to form these thoughts into movements and from there, the piece “Just Be” was born.

In the work, I explore subjects like support and “people first language.” What does it mean to support individuals with I/DD and then in return, how does that support translate into those individuals supporting themselves? The piece also focuses on people first, rather than labeling by an individual’s disability. I want my message to be positive and uplifting to every individual. Dance is universal and has no limits. This project has reinforced my belief the dance can bring people together, no matter their age, background, ability, experience, profession or skill level.

On Saturday, April 27, the ReVision dance company will perform “Just Be” and host a VIP reception organized in partnership with The Arc of the United States with a portion of the proceeds benefiting The Arc. The performance features children with disabilities from the Mamie D. Lee School who were taught by instructors from ReVision dance company. Also, the performance includes students from The Arc of the Northern Chesapeake Region shown on film. I hope you’ll be able to join us at Dance Place and help celebrate my father’s legacy to celebrate and love ALL people. Find out more about our dance company and this performance at www.danceplace.org.

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Ask a Simple Question During Developmental Disabilities Awareness Month

/in /by The Arc

As part of a month-long campaign to make some noise during Developmental Disabilities Awareness Month, The Arc posed an open-ended question to our Facebook audience of just over 9,000 people. We asked them what they would like people to be more aware of when it comes to intellectual and developmental disabilities (I/DD).

As of this writing, just a few hours after posing the question, several dozen of our friends chimed in, offering their answers, liking and commenting on other answers and sharing, sharing and more sharing. What is interesting is that almost every single answer touched on a unique concern or issue.

A challenge The Arc faces in its role as the national organization for people with intellectual and developmental disabilities is attempting to serve and advocate for a group of individuals who may have one or more of over 100 different diagnoses which fall under the umbrella of I/DD at any stage in their lives. This naturally means that we have to work on issues ranging from early intervention and early childhood education, to transition from school to adult life, to inclusion in the community all the way to the most sensitive end-of-life issues.

One just has to glance at the responses to this question to see the scope of this challenge. Men, women and teens are posting about employment issues, under-diagnosed and under-represented conditions, respectful language, Individualized Education Programs (IEPs), the adult service system and what happens after high school, and parents with I/DD raising their children.

But the first step to addressing those challenges is raising awareness. If the responses to our question on Facebook are any indication of the types of conversations that are happening across the country during Developmental Disabilities Awareness Month, then we are well on our way. If you are interested in joining this small army of advocates to raise awareness of what it takes to promote and protect the rights of people with I/DD to live, learn, work and play as participating members of their communities, check us out on Facebook and Twitter, find out more about the issues on our website and learn how you can support the work of The Arc.

Empower Yourself. Empower Someone Else. #DDAware!

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Empower Yourself, Empower Someone Else

/in /by The Arc

Twenty-six years ago we successfully advocated for March to be declared National Developmental Disabilities Awareness Month. And, there is no doubt that we have made tremendous strides to promote and protect the rights of people with I/DD to live, learn, work and play as valued and contributing members of their communities, the real strength of our message comes straight from the individuals we serve. No matter how effective our organization’s advocacy efforts may be, no one is as powerful an advocate for people with I/DD as a person with I/DD.

So, this year during March, The Arc would like to empower all individuals with I/DD to appoint themselves as their own advocates. As a self-advocate, you can help take the movement for people with I/DD to others in your community. It can start with a simple question. This March, ask everyone you meet: “Did you know that March is Developmental Disabilities Awareness Month?” That may spark a conversation – a teachable moment – when you can share your experience living with a disability with someone else.

All month, we’ll be working to raise awareness about the issues important to people with I/DD. As a self-advocate, you can help us “turn up the volume.” Take this opportunity to empower yourself and empower someone else with some of these simple suggestions:

Follow the conversation on Facebook (facebook.com/thearcus), Twitter (@thearcus) and here on our blog and be sure to chime in when you have something to say using the hashtag #DDAware.

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Developmental Disabilities Awareness Month Q&A With T.J. Sutcliffe

/in /by The Arc

This month, The Arc’s blog will feature a Q & A with members of The Arc’s national office staff to help raise awareness of issues important to the I/DD community during Developmental Disabilities Awareness Month. T.J. Sutcliffe is a policy advocate for The Arc working to promote and protect the rights of individuals with I/DD through positive public policy.

Q. T.J., you work on the front lines in Washington, DC helping to shape public policy to meet the needs of people with I/DD. Why is it important to take advantage of Developmental Disabilities Awareness Month in March to get involved in public policy?

“When a Member of Congress hears directly from a constituent with a disability … it can make the issue real in a way that statistics just can’t.”

A. Developmental Disabilities Awareness Month is the perfect time for people with I/DD, their families, and friends to get involved in public policy. Right now, the U.S. Congress is starting to look at Federal funding for next year, and we know that funding is going to be very tight. It’s a great time to speak up early in the process, and let Congress know that programs like Medicaid are a lifeline for people with I/DD and their families, and must be sustained. Also, a huge part of awareness is telling our stories – and the stories of people with I/DD and their families are incredibly powerful. When a Member of Congress hears directly from a constituent with a disability, a parent, a sibling, a friend, or a neighbor it can make the issue real in a way that statistics just can’t. So don’t wait. Check out The Arc’s “Don’t Cut Our Lifeline” Medicaid toolkit and visit The Arc’s Action Center to find out how you can get involved.

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Developmental Disabilities Awareness Month Q&A With Lynell Tucker

/in /by The Arc

This month, The Arc’s blog will feature a Q & A with members of The Arc’s national office staff to help raise awareness of issues important to the I/DD community during Developmental Disabilities Awareness Month. Lynell Tucker is the program manager for The Arc’s School-to-Community Transition Program funded by the Walmart Foundation. The program supports chapters of The Arc in improving outcomes for young adults transitioning to life beyond high school.

Q. Lynell, you are deeply involved in The Arc’s School-to-Community Transition program funded by the Walmart Foundation. Help us raise some awareness about transition issues for the I/DD community during Developmental Disabilities Awareness Month. What do you think is the biggest challenge facing young people with intellectual and developmental disabilities when they finish high school and have to transition to post-secondary education, employment or life in the community?

“Youth with I/DD have a world of opportunity open to them.”

A. The biggest challenge seems to be for people with intellectual and developmental disabilities to know what they want to do after high school. Youth with I/DD have a world of opportunity open to them; however, they may not always know that. We are seeing that there is a heavy focus on getting on waiting lists, applying for the adult service system, and making sure that they are able to access the necessary services and supports once they graduate. These are all vital aspects of transitioning into adult life; however, just as important is what one wants to do with their life – their hopes and dreams. Students and youth participating in the School-to-Community Transition Initiative are discovering for themselves what interests them. Do they want to go to college? Work in the community? Live independently, and so much more? The participating chapters of The Arc who are implementing transition programs are facilitating this discovery through the use of life planning tools. Students are overcoming the challenges by determining their future for themselves.

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Developmental Disabilities Awareness Month Q&A With Laurie Ertz

/in /by The Arc

This month, The Arc’s blog will feature a Q&A with members of The Arc’s national office staff to help raise awareness of issues important to the I/DD community during Developmental Disabilities Awareness Month. Laurie Ertz is the Director of Chapter Excellence and works with our national network of 700_ chapters to give them the tools and resources they need to better serve people with I/DD.

Q. Laurie, you recently helped launch The Arc’s National Council of Self Advocates. Why is it important to have people with intellectual and developmental disabilities in leadership roles at The Arc.

A. People with intellectual and developmental disabilities (I/DD), whether they identify as self advocates or not, are quite simply the only people who can tell us what truly matters to them. As much as the people who love and support them care about their well-being, that caregiver cannot completely put him or herself in the shoes of a person with an intellectual or developmental disability. So, as an organization, we need to fully include people with I/DD, especially in leadership roles to even hope to move forward toward our goal. It’s all about perspective and the unique perspective of an individual with I/DD is the most valuable resource we have as a movement.

“[They] are quite simply the only people who can tell us what truly matters to them.”

The National Council of Self Advocates was developed to ensure that individuals with I/DD have a clear voice in creating lives that allow them meaningful choices for a promising future. It’s designed to help them be leaders in their communities, share their values of self determination and help educate their communities about I/DD. We invite anyone with I/DD who is a member of The Arc to participate in or contribute to the Council and let us hear your voice!

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March Is the Month to Make Your Mark

/in /by The Arc

March is Developmental Disabilities Awareness Month thanks to a 1987 Presidential Proclamation from Ronald Reagan, which was the direct result of the advocacy efforts of The Arc. A lot has changed since then, more people with intellectual and developmental disabilities (I/DD) are living and thriving in their communities rather than institutions, there are more opportunities, more protections and more respect for and inclusion of people with I/DD in their communities. But we must remember that many of those advancements were hard won. Advocacy was the impetus for many of the positive changes in our society, such as the creation of DD Awareness Month. And that will continue only as long as we fight for it.

In 2012, a pivotal Presidential election year, we are fighting to protect Medicaid. Since many people with disabilities rely on publicly funded services to fully participate in their communities, policy makers need to know you are concerned about continuing those services in the face of budget cuts during tough economic times. Take advantage of March to make your mark on the candidates who hope to hold office in 2013 and beyond. Use Developmental Disabilities Awareness Month as a reason to get involved and get active today!

What Can You Do?

  • Help us educate candidates about the issues concerning people with I/DD. Learn more about public policy that impacts people with I/DD and then write letters and email and go to campaign events to tell the candidates what you expect them to do to earn your vote.
  • Find a local chapter of The Arc and get involved. Over the coming months we will be working through our national chapter network to help people talk to the candidates, register to vote, get to the polls and collectively make their mark!
  • Consider attending The Disability Policy Seminar in Washington, DC in April. Each year we spend two days covering current public policy in depth to prepare you for a third day on Capitol Hill actually meeting with your Members of Congress and discussing the issues.

Look for more information about our We’ve Got the Power Campaign to engage voters and candidates over the crucial months leading up to Election Day. Together, we do have the power and we can continue to create change!

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The Arc Launches Dynamic New National Brand Identity

/in /by The Arc

Washington, D.C. – The Arc, the largest organization advocating for and serving people with intellectual and developmental disabilities (I/DD), including Down syndrome, autism, FASD, cerebral palsy and other diagnoses, is changing its look and adopting a new visual identity. The Arc is joined in the launch of this rebranding initiative by state and local chapters representing more than 30 states.

“This is an exciting time in The Arc’s history,” said Peter V. Berns, CEO of The Arc. Our powerful, new, shared identify reflects the energy and the action of our organization as we work to transform the lives of people with I/DD.  This impactful and fresh identity will move us further in revitalizing The Arc – an organization that has been on the frontlines of advocacy and service for over 60 years –by harnessing the incredible power of those we serve.”

The Arc’s vibrant new logo and tagline communicate the organization’s commitment to promoting and protecting the human rights of people with I/DD and actively supporting their full inclusion and participation in the community throughout their lifetimes. The Arc’s logo is
emblematic of the organization’s embracing nature with the flowing “catalyst” icon; a burst of energy is symbolic of our support of independence. The new tagline, Achieve with us, conveys The Arc as a provider of opportunity, hope, growth and change.

The Arc’s new identity grew out of a lengthy, collaborative effort that began in spring 2008 and has involved literally thousands of The Arc’s volunteer and staff leaders, constituents and other stakeholders to create a visionary plan for the future: The Strategic Framework 2010-2019. A survey of chapters of The Arc demonstrated widespread support to rebrand and create a more compelling vision for The Arc.

The launch of The Arc’s new brand coincides with the commemoration of Developmental Disability Awareness Month in March. Nearly a quarter century ago, The Arc’s advocacy led to President Ronald Reagan officially proclaiming March to be Developmental Disabilities (DD) Awareness Month. Chapters of The Arc across the nation are celebrating DD Awareness Month with special events and activities. Over the past six decades, The Arc has championed groundbreaking legislation that has improved the lives of people with I/DD.

“There is tremendous energy and ‘buzz’ as we begin to implement The Arc’s new brand identity” said Mohan Mehra, Board President of The Arc. “This will help raise public awareness of The Arc and translate to greater support at both the local and national levels. I am especially invested in the new brand and have been involved since the start of the process. Having served as a business manager with Kraft Foods with experience in business strategy, marketing and sales I know that a new brand can make a real difference.”

The Arc selected CoreBrand, an award-winning branding firm, to design and execute the new identity led by Brand Director Jonathan Paisner.  “As a branding consultant, this was the rare opportunity to help discover and unleash a powerful brand simply waiting to be born,” Paisner said.  “A true collective voice –- one shared by and reflected in over 700 chapters – will certainly be a boon to fundraising, volunteerism and visibility in the corporate world. Yet the true impact of a greater national presence will ultimately bring all of these elements together to advance The Arc’s goals of inclusion, hope, opportunity and achievement.”

The look and feel of the new brand will advance further with the May 10, 2011 national announcement of The Arc’s FINDS (Family and Individual Needs for Disability Supports) survey results at the National Press Club in Washington, D.C.  The FINDS survey will yield a candid and current view on issues concerning the needs for disability supports across the lifespan. This unprecedented assessment of data from nearly 6,000 individuals will enable those in the field to better understand what services are available, what gaps exist and what new supports are needed.

Today, across the United States, the 700+ chapters of The Arc share common goals:

  • The Arc is embracing, determined and experienced in promoting and protecting the rights of people with I/DD;
  • The Arc provides key needed services and supports across the arc of a lifetime and across diagnoses, such as Down syndrome, autism and many other intellectual and developmental disabilities.
  • The Arc is banding together around the new and vigorous identity that embodies the energy and movement of The Arc to help people with I/DD feel empowered and included.

“We are thrilled,” Berns added, “that upon the launch today we will have more than 150 of The Arc’s state and local chapters simultaneously unveil The Arc’s new brand identity in communities across the country.  With close to 25% of chapters of The Arc on board already, and more chapters signing on daily, the successful implementation of our new brand strategy is well underway,” Berns explained.