The Arc Responds to Potential Change in Definition of Autism

Washington, DC – The Arc is the nation’s largest and oldest human rights organization for the people with intellectual and developmental disabilities (I/DD), serving more than a million individuals and their families including people with autism, Asperger’s syndrome, and pervasive developmental disorder, not otherwise specified (P.D.D.-N.O.S).  In response to the news that the American Psychiatric Association is working on revisions to the definition of autism, The Arc issued the following reaction:

“Over the last decade, we have made major strides in ensuring that people diagnosed with autism, Asperger’s syndrome, and P.D.D.-N.O.S. have access to the services that advance their health, education, independent living skills, and work skills.  These efforts have increased inclusion in educational settings, and, in society, young adults with disabilities are gaining life skills that can lead to jobs and independence.  The unintended consequences of a diagnostic definition change could potentially limit access to the services that children and adults with autism and P.D.D.-N.O.S. need, potentially putting at risk their education, and the health and economic stability of their own lives and the lives of their families,” said Peter V. Berns, CEO of The Arc.

Autism Bill Now Law – Celebrate, but Back to Work!

Thanks to many of you who reached out to your Members of Congress as the clock ticked down on the Combating Autism Act – President Obama signed a three year extension of the law on Friday. Without approval by the House and Senate, and President Obama’s signature, this important law for children on the autism spectrum could have disappeared.

The Combating Autism Act provides funding to educate professionals about proper screening, diagnosis, and intervention for children with autism spectrum disorder and other developmental disabilities. It also funds autism research and surveillance. The Leadership Education in Neurodevelopmental and Related Disabilities (LEND) program is just one of the things that the law supports.

While this is a moment to celebrate our success, our work is far from over. In 2014, Congress will need to revisit this law, and The Arc is committed to pushing for the next version to include services and research across the lifespan.

The Arc and the Autism Society Annouce Collaboration on the Autism NOW Center

The Arc and the Autism Society collaborate on Autism NOW: The National Autism Information and Resource Center — a National Initiative of The Arc and funded by the Administration on Developmental Disabilities. The partnership will include the engagement of the Autism Society in several aspects of the Center’s activities, including participation on the National Advisory Committee, providing information and referral services through the Autism Society’s AutismSource™ national contact center, and utilizing the Autism Society’s chapter network to disseminate information to the broader autism community about the Autism NOW Center’s activities and resources.

“We are thrilled that Autism Society will play such an important role in the operations and outreach of the Autism NOW Center,” stated Peter V. Berns, CEO of The Arc. “The Arc and Autism Society working together will ensure that more families connected to autism and other developmental disabilities have more meaningful resources and solutions for their needs.”

“We are looking forward to working with The Arc on Autism NOW to ensure that individuals on the autism spectrum and their families get the help they need in finding quality resources,” said Lee Grossman, President and CEO of the Autism Society. “We applaud  the Administration on Developmental Disabilities for responding to the community’s call for this much needed national resource and are pleased to contribute to it.” The Autism Society has provided information and referral services to the community through AutismSource since 1971. Families can access AutismSource at www.autismsource.org, submit an inquiry through www.autism-society.org/asa_contact or by phone at 1-800-3Autism.

In October, The Arc received an award of $1.87 million for fiscal year 2010 to establish a national resource and information center on Autism Spectrum Disorder (ASD) and other developmental disabilities. In collaboration with several key partners, The Arc is implementing an innovative and dynamic initiative to engage and leverage a national network of disability, aging, military, and family organizations to deliver information and resources relevant to individuals with ASD and other developmental disabilities. More information about the Center can be found at http://www.autismnow.org or by contacting TFerguson@AutismNow.org.

HollyRod Foundation Giving Away Free iPads to Children with Autism

Many people with iPads love all the fantastic things you can do with them. The folks at the HollyRod Foundation think children with autism should be no different.

The foundation, started by Holly Robinson Peete and Rodney Peete thirteen years ago to give a voice and a hand to those striving for quality of life when theirs has been diminished due to disease or disorders, is giving away free iPads to children with autism.

This giveaway isn’t just about handing out the latest and greatest gadget, but helping children with autism communicate with the world around them in a richer, more fulfilling way.

To find out more about the giveaway, and to download an application, visit the foundation’s site. Don’t forget to spread the word about this to parents, self-advocates and anyone else who might be interested.

Here are the eligibility requirements:

  • The individual you are applying for must have a diagnosis on the autism spectrum (as identified in diagnosis report).
  • Reside in the United States of America .
  • Be non-verbal or minimally verbal (as identified in speech pathology report).
  • Be in financial need: Gross income not to exceed $35,000 single income family or $50,000 two-income family (as identified by documentation).
  • Have access to a computer and an iTunes account (some programs must be downloaded on a computer and transferred to the iPad due to size).
  • A professional on your team (i.e., speech pathologist, doctor, teacher) must be willing to take responsibility of the gift card that downloads the applications.