The Arc and Baymont Inn & Suites – A Welcoming Partnership for Job Seekers with Intellectual and Developmental Disabilities: The Billy Jake Story

Billy Jake CelebrationAt the end of 2016, The Arc@Work launched a nationwide partnership with Baymont Inn & Suites. Through this initiative, The Arc@Work is helping individual hotels fill the brand-new Hometown Host position. The Hometown Host ensures guests feel at home and that there is plenty of delicious food throughout the daily breakfast service. The role is a symbol of the brand’s emphasis on neighborly service and dedication to community. The collaboration is a win-win for both organizations: helping individuals with intellectual and developmental disabilities (I/DD) secure a regular job in the community while assisting Baymont hotel owners in finding reliable, passionate employees who can connect with their guests and provide them with a great experience.

In honor of National Disability Employment Awareness Month, The Arc@Work interviewed Billy Jake, the first individual placed through this new initiative at his local Baymont Inn & Suites hotel in Celebration, Florida. Because of his interest in food, this young man initially applied to a local grocery store. Unfortunately, this endeavor did not turn out as he had hoped. Then one day Billy Jake’s job coach, Tre Johnson, informed him of The Arc@Work’s partnership with Baymont Inn & Suites. Thus, began a year of hard work and patience that ultimately landed Billy Jake the Hometown Host position.

During his first few months with the company, Billy Jake admits he “was uncomfortable being around lots of people at my job.” But each time he engaged, he grew a bit more at ease. Also, thanks to these frequent interactions with guests, Billy Jake’s speaking and social skills have improved immensely. His “kind and patient” colleagues have also contributed to his success. He loves it that they “encourage [him] to do better every day.”

Billy Jake now looks forward to waking up every morning and getting ready for work. His days are quite busy, arranging the daily breakfast buffet, ensuring diners’ desires and needs are met promptly, interacting with the hotel guests and colleagues, and, once the breakfast service is over, preparing for the next morning’s service. Then comes his favorite part: munching on goodies made by his colleague Kathy in the hotel kitchen!

Serving guests at Baymont Inn and Suites has increased his self-esteem and has given his life new meaning. In his words, “I feel like this job came along at the perfect time. It is working out wonderfully for me, and I am so grateful to my job coach [for helping] me find it.” Clearly a determined young man, Billy Jake now encourages other job-seekers with disabilities “to pick something they want to do and give it a try. You never know what is possible for you unless you try. If it does not work out, try something else. Never give up!”

Over the last six months, Baymont Inn & Suites has taken steps to make sure the Baymont franchises and the larger community is aware of their interest in hiring people with I/DD. They, like The Arc@Work, understand the positive contributions individuals with I/DD like Billy Jake make, not just in the workforce, but in society as well.

The Arc’s Statement on the Tax Reform Outline

The outline for tax reform released by the White House and leaders from two Congressional committees this week is long on promises and short on details. What is clear, however, is that this plan will rapidly deplete our federal revenues, the very resources that pay for programs that people with disabilities rely on to live in their communities. The fiscally conservative Committee for a Responsible Federal Budget estimates that the new plan could cost the country $2.2 trillion in lost revenue over a decade. This will leave states with far fewer federal dollars to help cover the costs for services for people with disabilities. The Administration and Congressional leaders have not indicated how they intend to pay for this tax proposal, aside from eliminating some expenditures.

We cannot morally or financially afford this tax plan that overwhelmingly benefits the wealthiest of our citizens and ramps up the pressure to cut federal spending down the road. The nation will likely pay for this unfair tax plan through massive budget cuts to programs that people with disabilities and others need for survival and basic necessities.

The President and Members of Congress should now understand the backlash that follows direct attempts to cut essential programs for people with disabilities and other large constituencies. Just this week, massive grassroots opposition to cuts to the Medicaid program stopped the latest attempt to overhaul our health care system.

And now, just days later, a new assault is likely hatching on Medicaid and other vital programs that ensure the health and wellbeing of people with disabilities. This time, however, the attack is indirect and seeks to lure with false promises. But people with disabilities and their families will be paying close attention to make sure that tax cuts are not paid for by in the long run by cuts to critical programs.

Attack on SSI: House Approves Cutting Off Basic Income for Adults with Disabilities and Seniors

Washington, DC – Today, the U.S. House of Representatives voted 244 to 171 to revive a failed former policy that cuts off Supplemental Security Income (SSI) benefits for certain people with disabilities and seniors. The legislation targets SSI recipients with outstanding arrest warrants for alleged felonies or alleged violations of probation or parole. Federal law already prohibits payment of SSI benefits to people fleeing from law enforcement to avoid prosecution or imprisonment, and the Social Security Administration has a process in place to notify law enforcement of the whereabouts of such individuals. The original policy ended due to class action litigation.

“This bill is unjust, cruel, and unnecessary, and shows total disregard for the day to day economic struggles of most SSI beneficiaries. SSI benefits average $18 per day and are the only personal income for nearly three in five beneficiaries. Cutting off these modest SSI benefits will cause significant hardship and will only make it more difficult for people to resolve old, outstanding arrest warrants. The Senate should reject this tried and failed approach,” said T.J. Sutcliffe, Director, Income and Housing Policy.

Based on experience with the former policy, H.R. 2792 would not help law enforcement to secure arrests, but instead would target people whose cases are inactive and whom law enforcement is not pursuing. Most of the warrants in question are decades old and include warrants routinely issued when a person was unable to pay a fine or court fee, or a probation supervision fee. Many people are not even aware that a warrant was issued for them, as warrants are often not served on the individual. Some people will be swept up because of mistaken identity, or paperwork errors, which can take months or even years to resolve. Many people will face barriers to clearing their records based on the nature of their disabilities or their current circumstances, for example, an individual with Alzheimer’s in a nursing home.

Resolving an old arrest warrant can often involve significant time and expense, such as when a person has moved and lives far from the jurisdiction that issued, but never pursued, a decades-old warrant. Anecdotally, a very high percentage of people affected by the former policy were people with mental impairments, including people with intellectual disability.

The proposal uses savings from cuts to SSI under H.R. 2792 to pay for legislation to reauthorize the Maternal, Infant, and Early Childhood Home Visiting (MIECHV) program.

“Home visiting helps to improve maternal and child health and increases access to screening and early intervention for children with disabilities. Reauthorization of this valuable program should not be paid for by cutting off SSI for people with disabilities, seniors, and their families,” said Sutcliffe.

As highlighted in a fact sheet by the Consortium for Citizens with Disabilities, here are two stories of people harmed by Social Security’s former failed policy: Rosa Martinez, the lead plaintiff in one of several class action law suits brought against the policy, and a juvenile survivor of childhood abuse:

  • Mistaken Identity: Rosa Martinez, the lead plaintiff in Martinez v. Astruewas, in 2008, a 52-year old woman who received notice from SSA that she was losing her disability benefits because of a 1980 arrest warrant for a drug offense in Miami, FL. Ms. Martinez had never been to Miami, never been arrested, never used illegal drugs, and is eight inches shorter than the person identified in the warrant. Despite an obvious case of mistaken identity, Ms. Martinez was left without her sole source of income while she cleared up the error on her own, without any help from SSA. It was only after filing a lawsuit that Ms. Martinez was able to receive her benefits.
  • Juvenile Survivor of Childhood Abuse: A young man in California with intellectual disability and other mental impairments had his SSI benefits stopped because of an Ohio warrant issued when he was 12 years old and running away to escape an abusive stepfather. The 4’7” tall, 85-pound boy was charged with assault for kicking a staff member at the detention center where he was being held until his mother could pick him up. Many years later, he had no recollection of the incident.

More stories of people harmed by SSA’s former failed policy are available from Justice in Aging.

 

The Arc advocates for and serves people wit­­h intellectual and developmental disabilities (I/DD), including Down syndrome, autism, Fetal Alcohol Spectrum Disorders, cerebral palsy and other diagnoses. The Arc has a network of over 650 chapters across the country promoting and protecting the human rights of people with I/DD and actively supporting their full inclusion and participation in the community throughout their lifetimes and without regard to diagnosis.

Disability Rights Protected Again: The Arc on Senate Not Voting on Graham-Cassidy This Week

Washington, DC – The Arc released the following statement following news that the United States Senate would not hold a vote this week on the Graham-Cassidy-Heller-Johnson proposal. This was the sixth attempt this year by Congress to repeal the Affordable Care Act and cut Medicaid.

“The Graham-Cassidy-Heller-Johnson proposal recycled the same threats to Medicaid we fought back on time and time again this year. It was an unacceptable approach for those who rely on Medicaid for a life in the community. While there won’t be a vote this week, it doesn’t change the fact that the architects of this bill showed a disturbing disregard for the important role Medicaid plays in meeting the needs of their constituents with intellectual and developmental disabilities.

“The victors in this battle are the advocates across the country who made clear that the disability community staunchly opposes legislation that includes per capita caps or block granting of Medicaid. We thank all the advocates who rallied together and would not be ignored when the civil rights of people with disabilities were at stake. We also thank the Members of Congress who joined us in opposing this bill.

“This year, we’ve fought multiple health care proposals that threatened the health and well-being of people with disabilities. While we celebrate this victory, we remain vigilant and ready to oppose future threats to Medicaid put forward by Congress,” said Peter Berns, CEO of The Arc.

 

The Arc advocates for and serves people wit­­h intellectual and developmental disabilities (I/DD), including Down syndrome, autism, Fetal Alcohol Spectrum Disorders, cerebral palsy and other diagnoses. The Arc has a network of over 650 chapters across the country promoting and protecting the human rights of people with I/DD and actively supporting their full inclusion and participation in the community throughout their lifetimes and without regard to diagnosis.

URGENT- 3 Day Medicaid STILL Matters Campaign-Get Your Story on the Record

The Senate is set to vote next week on the Graham-Cassidy bill, this is the most dangerous of the health care proposals that have been before Congress and it is on the fast track. Like previous proposals, this bill includes the per capita caps on the Medicaid program that would end Medicaid as we know it with a trillion dollar cut over two decades, and allows states to weaken consumer insurance protections such as the ban on pre-existing condition exclusion and the essential health benefit requirement.

The latest revisions to the bill INCLUDES the devastating cuts to the Medicaid programs that over 10 million people with disabilities rely on to live and work in their communities. The process that the Senate has been using since January to repeal and replace the Affordable Care Act has been out of regular order, with no committee meetings, public input or hearings. In a pathetic attempt to make an effort, the Senate Finance Committee has scheduled ONE hearing on Monday, September 25, 2017, details are here.

HERE IS WHAT YOU CAN DO:

Because not everyone will be able to attend the hearing to make their voices heard, The Arc of the United States will be collecting your stories to submit on Monday. The time is now to take action and tell your Senators what these devastating cuts will mean to you and your family and why MEDICAID MATTERS. Take a few moments before 9 AM SUNDAY EST to tell your Medicaid story HERE. We will hand deliver all the printed messages to the Senate Finance Committee on Monday, and send them directly to your Senators. So please act NOW, e-mails must be received by 9 AM EST on Sunday to be printed.

We want to show strong support for Medicaid from all over the nation, and get your story on the record. After you submit your story be sure to take action and contact your Senators to tell them to vote no on the Graham-Cassidy bill. If you have any questions please contact Nicole Jorwic at The Arc of United States: jorwic@thearc.org

How to Help After Hurricanes Harvey and Irma

Hurricanes Harvey and Irma left a staggering path of destruction. Throughout Texas and Florida and neighboring states, people will start rebuilding their homes and their lives, and they will need all our support to recover from the storms.

Here are some ways that you and people with disabilities in your life can work together to help our neighbors in Texas and Florida begin the slow process of recovery.

Volunteer

Many websites list volunteer opportunities to serve the community, including the chance to serve people impacted by the hurricanes. While some of these may be in Florida and Texas specifically, other opportunities to help may be in your hometown!

Check out these searchable databases for your chance to serve those in need: All for Good, Create the Good, Do Something, Eventbrite, HandsOn Network, Idealist, MeetUp, and Volunteer Match.

Give

One way to support people affected by the hurricanes is through giving.

People with intellectual and developmental disabilities served by chapters of The Arc, the chapters themselves, their employees, board members and volunteers have been impacted and are starting the long process of recovery. If you want to give, consider making a donation to The Arc of the United States Disaster Relief Fund. The Arc Texas also has a page available to donate specifically to disaster relief from Hurricane Harvey. You may also want to consider donating directly to state and local chapters in Florida and Texas to support their relief efforts.

To give more broadly, both The American Red Cross and Salvation Army have pages available for you to donate to people in need.

Keep Focused

The effects of these hurricanes will be felt over the next days, months, and years. As you seek to help, look for opportunities to stay engaged and to give to meet not only the need today, but future needs as well.

House Committee Advances Bill to Cut Off Basic Income for Adults with Disabilities and Seniors

Yesterday, by a vote of 23 to 14 the U.S. House of Representatives Committee on Ways and Means advanced legislation to cut off Supplemental Security Income (SSI) benefits for potentially hundreds of thousands of people with disabilities and seniors.

As amended by the Committee, H.R. 2792 would revive a failed former policy by targeting SSI recipients with outstanding arrest warrants for alleged felonies or alleged violations of probation or parole. This former policy ended following the resolution of class action litigation.

Federal law already prohibits payment of SSI benefits to people fleeing from law enforcement to avoid prosecution or imprisonment, and the Social Security Administration has a process in place to notify law enforcement of the whereabouts of such individuals.

Based on experience with the former policy, H.R. 2792 would not help law enforcement to secure arrests, but instead would target people whose cases are inactive and whom law enforcement is not pursuing. Most of the warrants in question are decades old and include warrants routinely issued when a person was unable to pay a fine or court fee, or a probation supervision fee. Many people are not even aware that a warrant was issued for them, as warrants are often not served on the individual. Some people will be swept up because of mistaken identity, or paperwork errors, which can take months or even years to resolve. Many people will face barriers to clearing their records based on the nature of their disabilities or their current circumstances, for example, an individual with Alzheimer’s in a nursing home.

Resolving an old arrest warrant can often involve significant time and expense, such as when a person has moved and lives far from the jurisdiction that issued, but never pursued, a decades-old warrant. Anecdotally, a very high percentage of people affected by the former policy were people with mental impairments, including people with intellectual disability.

“SSI benefits average $18 per day and are the only personal income for over one in three beneficiaries. Cutting off these modest SSI benefits will cause significant hardship and will only make it more difficult for people to resolve old, outstanding arrest warrants. Congress should reject this extreme and unconscionable proposal,” said T.J. Sutcliffe, Director, Income and Housing Policy.

As discussed at the Committee markup, the House is expected to propose to use savings from cuts to SSI under H.R. 2792 to pay for legislation to reauthorize the Maternal, Infant, and Early Childhood Home Visiting (MIECHV) program, also marked up by the Committee yesterday.

“Home visiting helps to improve maternal and child health and increases access to screening and early intervention for children with disabilities. Reauthorization of this valuable program should not be paid for by cutting off SSI for people with disabilities, seniors, and their families,” said Sutcliffe.

As highlighted in a fact sheet by the Consortium for Citizens with Disabilities, here are two stories of people harmed by Social Security’s former failed policy: Rosa Martinez, the lead plaintiff in one of several class action law suits brought against the policy, and a juvenile survivor of childhood abuse:

  • Mistaken Identity: Rosa Martinez, the lead plaintiff in Martinez v. Astrue was, in 2008, a 52-year old woman who received notice from SSA that she was losing her disability benefits because of a 1980 arrest warrant for a drug offense in Miami, FL. Ms. Martinez had never been to Miami, never been arrested, never used illegal drugs, and is eight inches shorter than the person identified in the warrant. Despite an obvious case of mistaken identity, Ms. Martinez was left without her sole source of income while she cleared up the error on her own, without any help from SSA. It was only after filing a lawsuit that Ms. Martinez was able to receive her benefits.
  • Juvenile Survivor of Childhood Abuse: A young man in California with intellectual disability and other mental impairments had his SSI benefits stopped because of an Ohio warrant issued when he was 12 years old and running away to escape an abusive stepfather. The 4’7” tall, 85-pound boy was charged with assault for kicking a staff member at the detention center where he was being held until his mother could pick him up. Many years later, he had no recollection of the incident.

More stories of people harmed by SSA’s former failed policy are available from Justice in Aging.

The Arc Responds to Graham-Cassidy-Heller-Johnson Health Care Proposal

Architects of this bill are still ignoring the pleas of their constituents with disabilities

Today, U.S. Senators Lindsey Graham (R-SC), Bill Cassidy (R-LA), Dean Heller (R-NV), Ron Johnson (R-WI) and former US Senator Rick Santorum (R-PA) unveiled the latest attempt to repeal the Affordable Care Act. The Arc released the following statement in response:

“While this piece of legislation has a new title and makes new promises, it is more of the same threats to Medicaid and those who rely on it for a life in the community. The Graham-Cassidy-Heller-Johnson proposal cuts and caps the Medicaid program. The loss of federal funding is a serious threat to people with disabilities and their families who rely on Medicaid for community based supports.

“Many of the provisions in this legislation are the same or worse than what we encountered earlier this year, which shows that the architects of this bill are still ignoring the pleas of their constituents with disabilities. The talking points sugar coat it, but the reality is simple – under this proposal less money would be available despite the fact the needs of people who rely on Medicaid have not decreased.  The Arc remains staunchly opposed to legislation that includes per capita caps or block granting of Medicaid. We need Members of Congress to find a solution that actually takes into consideration the needs of people with intellectual and developmental disabilities,” said Peter Berns, CEO of the The Arc.

Choosing Between a Paycheck and Health: New Report on Paid Family Leave and the Disability Angle

Washington, DC –Today, The Arc and the Georgetown Center on Poverty and Inequality are releasing a first of its kind paper outlining why paid family and medical leave is a necessity for the economic security and stability of people with disabilities and their families.

The need for paid family and medical leave is universal. Nearly all of us will need paid leave at some point – to care for a family member’s or our own serious medical condition, or to welcome a new child into a family. Missing from the national conversation is the disability angle. One in five Americans live with a disability. Yet the reality is, in the U.S. workforce, only 1 in 7 workers has access to paid family leave to care for a family member with a serious health condition. Roughly 2 in 5 workers report they lack access to any paid leave.

“Millions of workers in our economy either have a disability, or have a family member with a disability. Yet largely under the radar has been the disability community – too many people are being forced to choose between a paycheck and their own health or a family member’s health. This paper aims to elevate the disability angle on paid leave, a national issue with growing momentum,” said co-author TJ Sutcliffe, Director, Income and Housing Policy, The Arc.

“If policymakers are serious about improving employment outcomes of people with disabilities, they should work to establish a comprehensive and inclusive paid family and medical leave program,” said co-author Kali Grant of the Georgetown Center on Poverty and Inequality. “We know paid leave has wide-reaching benefits, and that’s particularly true for people with disabilities and their families.”

Many people in the U.S. struggle to get by and pay for basics. That’s particularly true for people with disabilities and their families, who are more likely to live in poverty, have limited savings to fall back on, and face added disability-related expenses and barriers to work.

The paper found that households with one or more members with a disability have an average household income that is only about two-thirds that of households where no one has a disability. As highlighted in the paper, according to the National Disability Institute, 31% of people with disabilities say it is “very difficult” to cover their monthly expenses, compared to 15% of people without disabilities. And 4 in 5 people with disabilities lack any sort of rainy day fund.

Workers with disabilities are particularly likely to be in part-time, low-wage jobs that often don’t offer even basic benefits – much less paid family and medical leave. Over 2 in 3 part-time workers don’t have even one sick day. Workers with disabilities are twice as likely as workers without disabilities to be part-time.

“By offering job-protection, continuing health coverage, and temporary replacement income, comprehensive paid leave has the potential to ensure financial stability for the millions of working families with a member with a disability,” said Grant.

To fully address the needs of all Americans, including people with disabilities and their families, the paper recommends that a national paid leave approach should, among other things, be accessible to all working people and reflect a modern definition of family, cover all the major reasons that people need to take leave (one’s own health, a family member’s health, a new child), replace sufficient wages so that people can make ends meet, be for long enough to promote positive outcomes, ensure that people can keep their jobs and health insurance, and include education and outreach that is fully accessible to people with disabilities.

“Knowing that your job will be there for you if you take paid leave is a must for nearly all of us. And disability knows no geographical, socio-economic, or political boundaries. Other countries have done better, and American workers, including people with disabilities and their families, desperately need better,” said Sutcliffe.

Hear one family’s story about paid leave, and meet others who have personal experience with paid leave.
The Arc advocates for and serves people wit­­h intellectual and developmental disabilities (I/DD), including Down syndrome, autism, Fetal Alcohol Spectrum Disorders, cerebral palsy and other diagnoses. The Arc has a network of over 650 chapters across the country promoting and protecting the human rights of people with I/DD and actively supporting their full inclusion and participation in the community throughout their lifetimes and without regard to diagnosis.

Editor’s Note: The Arc is not an acronym; always refer to us as The Arc, not The ARC and never ARC. The Arc should be considered as a title or a phrase.

The Georgetown Center on Poverty and Inequality (GCPI) works with policymakers, researchers, practitioners, and advocates to develop effective policies and practices that alleviate poverty and inequality in the United States. Further information about GCPI and their Economic Security and Opportunity Initiative (ESOI) is available at www.georgetownpoverty.org.

The Arc on the DACA Announcement: “Ending DACA is an assault on community inclusion”

Washington, DC – Today, The Arc released the following statement on the news that President Trump will wind down the Deferred Action for Childhood Arrivals, or DACA, program:

“The Arc’s public policy goals include protecting against forms of discrimination including that based on disability, ethnicity, race, religion, language, national origin, or any other protected status. The goals also call for providing a fair opportunity for people with disabilities to reside legally in the U.S. and to become citizens. We also urge appropriate waivers of immigration law to allow for active recruitment of direct support workers.

“For hundreds of thousands of young people with the DACA protected status, their nightmare came true with the news that the program will end and they are at risk of deportation for a decision years ago made by others when they were children. Many would be sent to countries they have no real knowledge of or contacts in. In some cases, deportation could be dangerous.

“Amongst those at risk are people with disabilities, their parents, siblings, friends, and allies. The natural support system for a person with a disability tends to be their family, and over the last several decades, American society has moved toward inclusion in the community instead of isolation for people with disabilities. And so when the family is ripped apart – siblings sent thousands of miles away, a person with a disability separated from their parents – life is turned upside down. When communities lose people of different abilities and backgrounds, we all lose. Ending DACA is an assault on community inclusion and would move our country backwards.

“This is a cruel outcome that Congress must fix before it’s too late – before people are shown the door and their lives, families, and communities are impacted forever,” said Peter Berns, CEO, The Arc.