What’s Your Definition of Autism?

Young Child With AutismAs you may know, a new edition of the Diagnostic Statistical Manual (DSM) is coming out in May with changes to the definitions of certain disorders on the autism spectrum which is used by medical professionals, government agencies and insurers. There has been much talk about what this will mean to individuals and their families when it comes to obtaining a diagnosis and receiving services. But during Autism Awareness Month in April, The Arc and Autism NOW would like to refocus the conversation on the individuals living with autism day to day and ask: “What’s Your Definition of Autism?” What does the word “autism” really mean to you on a personal and individual level?

This April, we invite you to join us in raising awareness about what autism really means. Here’s how YOU can participate in furthering the conversation during Autism Awareness Month – be sure to jump in with your thoughts and feelings on what the definition of autism is to you and share with everyone you know using the hashtag #AutismAware:

Follow Autism NOW on Facebook and Twitter

Follow The Arc on Facebook and Twitter

Join The Arc’s online community

Read The Arc’s blog

Sign up to receive Autism NOW’s Prism e-newsletter

Join the Autism NOW forums

2 thoughts on “What’s Your Definition of Autism?

  1. I am trying to figure out how to comment on ‘ what Autism means to me personally.’…WHERE do I post??? I do not understand hashtag??? I am a single mom to a 22 year old (often sleepless) very active son with severe Autism, no speech, OCD, TouretteSyndrome and prompt dependence. I do not have time to run around FB and try to figure it out. So I am not familiar with it. People need to make these things so that ALL parents can be involved. I have enough frustration in my life trying to keep up with my son and keep him safe, not to mention shower him, shave him, brush his teeth and hair, keep him from drinking from the toilet, throwing things on the roof, stacking EVERYTHING in his room, including furniture on his bed in the middle of the night or just plain running off….etc. etc. This may be why not many people hear about the more severe cases of Autism, because we just plain can’t ..because our kids take EVERY SECOND of our days and nights…and more.

  2. Right on Lindy, I’m in the same boat. My son is up till midnight every night, falls asleep, wakes up at 3:30, and it starts again. I live in an apartment, and spend more time sleeping in the car – he has too many fits, makes too much noise – neighbors called the cops on us. He’s six years old, and I probably, no joke, havent slept more than 4 hours straight in two years. I’m a single dad, and I’m about to drop. That’s what autism means to me.

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