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The Arc Responds to President’s Committee for People With Intellectual Disabilities 2017 Report

Washington, DC – Earlier this month, the President’s Committee for People with Intellectual Disabilities (PCPID) released the 2017 report “America’s Direct Support Workforce Crisis: Effects on People with Intellectual Disabilities, Families, Communities and the U.S. Economy”. The Arc released the following statement in response to the report:

“Direct support professionals play a vital role in the lives of people with intellectual disability and their families, yet as this report outlines, we are facing a crisis when it comes to recruitment and retention in this essential field. These highly skilled workers allow many individuals with intellectual disability to live, work, and learn in the community and lead self-directed lives. But increasingly, our community is losing these vital workers to higher-paying, less demanding jobs where proper training and competitive benefits are provided.

“Nationally the shortage of direct support professionals is a priority initiative for The Arc and our chapter network. We are grateful that this report not only sheds light on this growing epidemic but also offers tangible solutions to the Trump Administration. As this crisis continues, individuals with intellectual disability and their families face uncertainty and anxiety. The Arc and our chapter network remain a resource as we work to address this crisis nationally, but we encourage prompt and immediate action,” said Peter V. Berns, CEO of The Arc and member of PCPID.

The Arc’s Direct Support Professional (DSP) Toolkit is highlighted in the report. The toolkit was created to support chapters of The Arc with DSP retention and recruitment. This tool was developed and used in pilot demonstrations conducted by the Research and Training Center on Community Living at the University of Minnesota.
The Arc advocates for and serves people wit­­h intellectual and developmental disabilities (IDD), including Down syndrome, autism, Fetal Alcohol Spectrum Disorders, cerebral palsy and other diagnoses. The Arc has a network of over 650 chapters across the country promoting and protecting the human rights of people with IDD and actively supporting their full inclusion and participation in the community throughout their lifetimes and without regard to diagnosis.

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President Obama Re-Appoints The Arc’s CEO Peter Berns to the President’s Committee for People With Intellectual Disabilities

Washington, DC – Last week, President Barack Obama announced appointments to the President’s Committee for People with Intellectual Disabilities, which included The Arc’s CEO Peter Berns. This expert group will provide advice and assistance to President Obama and the Secretary of Health and Human Services on a broad range of topics that impact people with intellectual and developmental disabilities (IDD) and their families.

“I’m honored to continue my role on this panel advising the Obama Administration on matters related to the inclusion of people with IDD in their communities. We are facing enormous challenges right now with education, employment, community living and basic income supports for individuals with disabilities; it is clear we need to increase our efforts. There has been great progress since this committee was first convened in 1961, but we still have much work to do before we have a truly inclusive society. It is a critical time for the disability community, and I look forward to working with my colleagues to find real results for individuals with disabilities,” said Berns.

The President’s Committee for People with Intellectual Disabilities has a rich history, dating back to October 1961, when President John F. Kennedy appointed the first panel to advise him on a broad range of topics relating to people with IDD. This was a turning point for the IDD community, as President Kennedy shined a spotlight on the deplorable living conditions in institutions and limited opportunities for people with IDD across the country. The panel produced a report with more than 100 recommendations for research into the causes and prevention of IDD and for expanding opportunities for education, employment and community living and participation. President Kennedy pushed and signed into law major pieces of legislation that established the foundation for current civil rights protections and programs and services for people with IDD.

A nationally recognized nonprofit sector leader and public interest lawyer, Berns joined The Arc in 2008. Previously, he was Executive Director of the Maryland Association of Nonprofit Organizations from 1992 to 2008. He was CEO of the Standards for Excellence Institute from 2004 to 2008. Earlier in his career, he held positions in the Maryland Attorney General’s Office, including Assistant Attorney General and Deputy Chief of Consumer Protection. Mr. Berns was first appointed to the President’s Committee for People with Intellectual Disabilities in 2011. He has been named to The Nonprofit Times’ Power and Influence Top 50 list five times over the past decade. Mr. Berns received a B.A. from the University of Pennsylvania, a J.D. from Harvard Law School, and an L.L.M. from Georgetown University Law Center.

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President Obama Appoints The Arc’s CEO Peter Berns to the President’s Committee for People With Intellectual Disabilities

WASHINGTON – This week, President Barack Obama announced his appointments to the President’s Committee for People with Intellectual Disabilities, which included The Arc’s CEO Peter Berns. This expert group will provide advice and assistance to President Obama and the Secretary of Health and Human Services on a broad range of topics that impact people with intellectual and developmental disabilities (IDD) and their families.

“I’m honored to be a part of this panel advising the Obama Administration on matters critical to the inclusion of people with IDD in their communities. We are facing enormous challenges right now, with federal and state budget crises threatening the services that support people with IDD to thrive in society,” said Berns.

The President’s Committee for People with Intellectual Disabilities is rich with history, dating back to October 1961, when President John F. Kennedy appointed the first panel of this kind to provide the nation with direction for progress in the field of IDD. This was a turning point for the IDD community, as President Kennedy shined a spotlight on the deplorable living conditions in institutions and limited opportunities for people with IDD across the country. The panel produced a report with more than 100 recommendations for research into the causes and prevention of IDD and for expanding opportunities for education, employment and community living and participation. President Kennedy  pushed and signed into law major pieces of legislation that established the foundation for current civil rights protections and programs and services for people with IDD.

By the 1960s, The Arc had emerged as a strong voice advocating for community living and with it the appropriate supports and services people with disabilities need. Today, The Arc is the largest organization advocating for and serving people with IDD, including Down syndrome, autism, FASD, cerebral palsy and other diagnoses. The Arc has a network of over 700 chapters across the country promoting and protecting the human rights of people with IDD and actively supporting their full inclusion and participation in the community throughout their lifetimes and without regard to diagnosis.  According to the U.S. Department of Health and Human Services, nearly 30 million, or one in ten families in the United States, are directly affected by a person with intellectual disability at some point in their lifetime.

“The members of this panel will represent millions of Americans and their families at a critical juncture in our efforts to improve the lives of people with  IDD. I’m looking forward to joining this group and bringing with me the powerful, personal stories of the hundreds of thousands of families that are part of The Arc,” said Berns.

A nationally recognized nonprofit sector leader and public interest lawyer, Berns served as the Executive Director of the Maryland Association of Nonprofit Organizations from 1992 to 2008 prior to leading The Arc. In addition, he served as Chief Executive Officer of the Standards for Excellence Institute from 2004 to 2008 where he developed Standards for Excellence: An Ethics and Accountability Code for the Nonprofit Sector. A frequent lecturer, facilitator, consultant, and trainer, he has served as an adjunct faculty member at Johns Hopkins University.  He was named to the Nonprofit Times Power and Influence Top 50 list five times in the past decade. Berns has a B.A. from the University of Pennsylvania, a J.D. from Harvard Law School and an LL.M. from Georgetown University Law Center.