As noted in a statement by Marty Ford, Senior Executive Officer for Public Policy, The Arc applauds the Senate, which last week “…listened to the voices of people with disabilities and seniors, and removed a harmful proposal from legislation to reauthorize our nation’s highways, bridges, and public transportation system. The proposal would have partially funded the bill with cuts to Social Security, SSDI, and SSI. Social Security must not become a piggybank to pay for unrelated programs, no matter how important, and beneficiaries cannot afford any cuts to these modest but vital benefits. The Arc will remain vigilant and ready to fight back if any similar proposals arise as Congress continues to debate reauthorization of surface transportation legislation.”
On July 16, the Older Americans Act Reauthorization Act (S. 192) passed the Senate without amendment. S. 192 is sponsored by Health, Education, Labor, and Pensions (HELP) Committee Chair Lamar Alexander (R-TN), Ranking Member Patty Murray (D-WA) and Senators Richard Burr (R-NC), and Senator Bernie Sanders (I-VT). Among many other things, the bill includes a fix to the National Family Caregiver Support Program (NFCSP) which provides information to caregivers about available services, assistance in accessing services, individual counseling, support groups, caregiver training, respite care, and supplemental services. S. 192 would extend NFCSP eligibility to older (age 55 and over) caregivers of their adult children (age 19 to 59) with disabilities. The House is expected to take up the measure in the near future.
The bipartisan Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act (S. 1719) was introduced in the Senate on July 8, by Sens. Susan Collins (R-ME) and Tammy Baldwin (D-WI). A companion bill (H.R. 3099) was introduced in the House the following week by Representatives Gregg Harper (R-MS) and Kathy Castor (D-FL). The Arc supports the RAISE Family Caregivers Act as it would implement the bipartisan recommendation of the federal Commission on Long-Term Care, that Congress require the development of a national strategy to support family caregivers. The bill would create an advisory body to bring together relevant federal agencies and others from the private and public sectors to advise and make recommendations. The advisory body would identify specific actions that government, communities, providers, employers, and others can take to recognize and support family caregivers, and be updated annually
Last week, the White House held a commemoration in honor of the 25th Anniversary of the Americans with Disabilities Act (ADA). President Obama delivered a speech and noted that while there was certainly reason to celebrate, it is “also a chance to address the injustices that still linger, to remove the barriers that remain.” The President described efforts his administration has undertaken to remove these obstacles, including signing an executive order mandating the U.S. government include more people with disabilities in its workforce and to establish the first special advisor for international disability rights at the State Department. The celebration was attended by several prominent legislators, agency heads, and leaders in the disability community, including former Senators Tom Harkin (D-IA) and Bob Dole (R-KY) , former Congressman Tony Coelho (D-CA), Representative Steny Hoyer (D-MD), the House Minority Whip, and Secretary of Labor Tom Perez. View the President’s speech here, read a transcript here, and see the White House ADA anniversary fact sheet here. In addition, a number of federal agencies hosted their own events:
- The Department of Justice, the Equal Employment Opportunity Commission (EEOC), and the Access Board celebrated the event with speeches by Attorney General Loretta Lynch, EEOC Commissioner Chai Feldblum, Senator Bob Dole, Senator Tom Harkin and Representative Steny Hoyer. During the celebration, the EEOC and DOJ signed a Memorandum of Understanding (MOU) to strengthen ADA and Genetic Information Nondiscrimination Act enforcement efforts by the agencies. Read more about the event here.
- The Department of Labor held a series of events including a conversation between Secretary of Labor Tom Perez and disability employment champions Senator Tom Harkin and Delaware Governor Jack Markell. Watch the video here and see the Department’s ADA webpage here.
- The Department of Education hosted an event that included a speech by Secretary Arne Duncan, a panel discussion, and outdoor demonstrations of accessible programs and resources. Learn more here.
Click here to see a comprehensive listing of all ADA commemorative events throughout the summer.
Last week, the Social Security Board of Trustees released “The 2015 Annual Report of the Board of Trustees of the Federal Old-Age and Survivors Insurance and Federal Disability Insurance Trust Funds.” The 2015 report finds that Social Security has large and growing reserves. In 2014 Social Security took in roughly $25 billion more (in total income and interest) than it paid out. Social Security’s reserves were $2.79 trillion at the beginning of 2015, and are projected to grow to $2.86 trillion at the beginning of 2020. The long-term projections of the 2015 Trustees Report improved slightly from the 2014 Trustees Report, with exhaustion of the combined Trust Funds occurring one year later, in 2034. The 2015 Trustees Report also continues to project that the Disability Insurance (DI) trust fund by itself will be able to pay full benefits until the end of 2016, at which point if no action is taken the DI trust fund will be able to pay about 81 percent of scheduled benefits.
Last week, Representative Xavier Becerra (D-CA) and 22 original cosponsors introduced the One Social Security Act (H.R. 3150). The bill would avert a 19% across-the-board cut to Social Security Disability Insurance (SSDI) benefits at the end of 2016 by merging the Social Security Old-Age and Survivors Insurance (OASI) and Disability Insurance (DI) Trust Funds into a single Trust Fund. This new financial structure would better reflect Social Security’s already unified nature: a single payroll tax currently pays for an interrelated system of Social Security retirement, survivors, and disability benefits, and changes to one part of this system often impact all parts of the system. The Arc supports the One Social Security Act. More information about the bill is available online.
Staying physically active, along with eating healthy, is one of the most important things individuals with intellectual disabilities (ID) can do to make sure their body stays healthy and in shape. However, many individuals with ID don’t get the recommended amount of physical activity per week. There are many reasons why individuals don’t get this recommend amount. Transportation issues, not knowing how to get started, and expensive and unaccommodating gyms are just a few.
Being physically active doesn’t mean they have to spend hours in the gym though. Finding small ways in daily life that they can increase their physical activity level will help them to become more active and healthy without having to set aside a lot of extra time, find transportation, or pay expensive fees.
Here are 5 easy ways to help individuals with ID infuse physical activity into their daily life.
- Walk – If they are in a wheelchair and can’t walk, wheel. If they live in community that is save and well paved, walking is an easy and free activity that has many great health benefits! Make it social and start a walking club in the community or with friends. If it’s close enough (and there’s a safe path) walk to the store to run small errands, etc.
- Dance – Turn up that music! Dancing is a great way to burn calories and most of all is fun! Set aside 10-20 minutes after lunch and/or dinner for dance time. It’s a great way to get up after a meal and burn some calories that doesn’t require any special equipment or skills.
- Stretch – Waking up ten minutes earlier and allowing time to do some proper stretching will help to get blood flowing and muscles warmed up for the day. Doing this every day will help increase flexibility, decrease injuries, and is a great way to wake up and get the day started.
- Garden – Growing and maintaining a garden is a great way to get in some extra activity and learn responsibility. And they’ll have fresh vegetables to show for it! It also encourages healthy eating and education as individuals learn about what they’re growing.
- Utilize TV time – Watching small amounts of TV is OK, but it’s still a lot of sitting time. Utilize the time during commercials to do small exercises such as squats, arms circles, or marching in place. You could even make a game out of it. This will give individuals a few extra minutes of activity per day while watching their favorite TV shows.
Finding small ways to gradually increase physical activity throughout the day will help to get individuals with ID in a happier mind frame and slowly expose them to fun subtle ways to be more active, without making fitness seem like a chore. Gradually, they will start to have more energy and be healthier without even noticing it!
For more information on health and nutrition, check out The Arc’s HealthMeet project, which strives to help individuals with ID improve their health and quality of life.
The White House Conference on Aging will be held on July 13, 2015, during a momentous year in which we mark the 80th anniversary of Social Security as well as the 50th anniversary of Medicare, Medicaid, and the Older Americans Act. The conference provides an opportunity to discuss these critical programs and find ways to strengthen them to continue to serve older Americans in the next decade.
These programs not only serve older Americans, but they also serve people with intellectual and developmental disabilities (I/DD). At The Arc, we are committed to advocating for people with I/DD and their families. This means ensuring that individuals with I/DD have services in place throughout their lifespan and that aging caregivers of people with I/DD have the support they need.
We spoke to advocates and caregivers to ask them what issues need to be addressed at the White House Conference on Aging. Here are their questions:
Carla Behnfeldt: I am 55 years old and live in Pennsylvania. My parents, who are in their 80s, and my 57 year old brother who has intellectual and developmental disabilities, all reside in upstate New York. My parents worked hard to find a good group home for him near their home and to get him Medicaid long term services and supports. Due to their age, my parents are in need of more and more support from me, and I would like for us all to live close together. I looked into having my brother move to Pennsylvania. I was shocked to learn that he might have to wait years to receive Medicaid services in Pennsylvania. And, there is no guarantee that Pennsylvania would provide him the services that New York does. My parents won’t move if my brother can’t move. The fact that my brother’s services can’t be transferred between states makes it very difficult for me to become my brother’s primary supporter and to provide my parents with the care they deserve as they age. What are your proposals to make Medicaid benefits portable between states?
I am 70 years old. For 21 years, I worked as a parent coordinator at The Arc of King County in Washington State. Our son Dan, who had Down syndrome, died when he was 36. Many of the parents I worked with are in their 70s, and their children with intellectual and developmental disabilities are still living at home with them. Their sons and daughters are middle-aged now, and when the family tries to get the government support that would enable the son or daughter to move into a new living arrangement, the families are told that they need to go on a waiting list. These lists are often a decade or more long. The Community First Choice Option created by the Affordable Care Act, with its additional federal matching funds in 2014-15 will allow our state to be able to have the funding to move 1000 individuals onto our Basic Plus Medicaid Waiver. But there are still 10,000 individuals and families in our state who have NO PAID SERVICES. The senior families have waited the longest. Many have simply given up asking for help. This is just wrong. It is not uncommon for the individual to lose their last parent, be moved from their home and be moved in with people they have never met – all on the same day. The parents should be able to support their sons and daughters while they transition to a new home. What are you doing to change things so these parents can live out their senior years with a sense of peace and comfort in the knowledge that their sons and daughters will live a good life after they are gone?
I am 70 years old and live in Tustin, California. My younger daughter, Crystal, is 29 and has Down syndrome. She works at a senior center and lives at home with me. We’ve started the planning process as a family to make sure she continues to live a happy and independent life when I’m no longer able to provide support.
English is my second language and the planning process can be difficult to understand. What is being done to make sure that people from different backgrounds can get support from people who speak our language and understand where we are coming from?
Carrie Hobbs Guiden, Executive Director, The Arc of Tennessee
There are nearly a million families in the United States in which adults with intellectual and developmental disabilities are living at home with an aging caregiver. Most do not have a plan in place for what is going to happen when these caregivers are no longer able to provide support. There are many barriers to planning – including fear – but it is important that families make a plan for the future. They should gather information about the family’s history and wishes, and they should explore housing, employment and daily activities, decision making supports, and social connections. What are your proposals to help these families to plan for the long term needs of their adult children with disabilities?
The Arc’s Center for Future Planning aims to support and encourage adults with intellectual and developmental disabilities (I/DD) and their families to plan for the future. The Center provides reliable information and practical assistance to individuals with I/DD, their family members and friends, professionals who support them and other members of the community on areas such as person-centered planning, decision-making, housing options, and financial planning. Visit the Center’s website at futureplanning.thearc.org for more information.
Co-Authored by: Vee Cecil and The Arc. Vee is a Wellness Coach, Personal Trainer, and Boot camp Instructor who lives in Kentucky with her family. Vee is passionate about studying and sharing her findings in wellness through her recently-launched website.
Summer is officially in full swing. And for many, that means spending more time outside on sunny days or trips to local pools or beaches. Swimming is a great way to fill up those summer days for many reasons. It is an excellent form of exercise and it has also been shown to have mental health benefits.
That said, any time individuals with intellectual and developmental disabilities (I/DD) are around water, extra precaution should be taken. The National Autism Association pegs drowning as one of the leading causes of death among children with autism, and as Prevention1st.org notes, children with developmental disabilities are twice as likely to suffer an unintentional injury. One factor that further endangers individuals with autism and other intellectual disabilities is that they may not immediately understand the dangers of water. Especially in the case of children with autism, they may even be drawn to it or fascinated by it. This is why it is so important that parents, caregivers, and individuals with I/DD and autism understand water safety practices. Adaptive swim lessons are given through the YMCA at various locations throughout the US. Click here to see a list of locations.
CDC’s recent issues of Vital Signs stated that the rates of melanoma, the most deadly form of skin cancer, have doubled over the last 3 decades. Applying (and remembering to reapply) sunscreen when outdoors, after getting out of the water, and especially during peak sun hours will help to prevent sunburn and furthermore skin cancer. Sunscreen should be at least an SPF of 15 and applied on sunny as well as cloudy days.
Monitoring how much time is spent outside on hot days is also very important. Overheating, (often called heat exhaustion or in extreme cases heat stroke), can be serious if the indicators are overlooked. Signs of heat illness that can occur when spending too much time outside can include:
- Headache and dizziness
- Nausea and vomiting
- Red clammy skin
- Not sweating when hot out (or stop sweating)
If any of these symptoms are present, an individual should get out of the sun immediately and head indoors or to a shady spot. If available, a cool wet washcloth should be applied to their skin to help bring down their body temperature. To help prevent overheating make sure to drink plenty of water before, during, and after spending time outside. When planning outdoor events, keep in mind that the sun is at its hottest between 10am and 4pm, so having spots where individuals can go inside to cool down or seek some shade is vital.
Making sure those you care for are well informed about how to stay safe in the sun and near water this summer is essential. The Arc’s HealthMeet project has developed Water Safety, Sun Safety, and Heat Sickness flyers to post in and around your organization to help teach and reinforce these important lessons.
Osteoporosis, a condition where an individual’s bones become increasingly brittle and fragile, is one of the most commonly diagnosed bone diseases in the U.S. However, screening and diagnosis for individuals with disabilities are commonly overlooked. While screening for the general population usually starts later in life around age 65, individuals with disabilities should start being screened much earlier since the risk often comes at an earlier age. Osteoporosis is a secondary condition that can be alleviated (and in some cases prevented) if proper treatment and screening measures are in place.
Osteoporosis usually affects women (especially postmenopausal) more than men. Women with specific disabilities that impair mobility are even more at risk to developing osteoporosis due to bone loss from immobility. Other lifestyle factors that can contribute to osteoporosis are:
- Low levels of calcium and vitamin D
- High levels of alcohol use
- Small bone structure
- Frequent use of steroid treatments
Through the HealthMeet project we have found that the rate of falls for individuals with disabilities was 3 times higher than the rate for the general population. Falling can be particularly dangerous for an individual with osteoporosis, which can easily cause fractures and breaks that can lead to increased mobility issues and extensive hospital fees. Making sure homes and organizations are set up to prevent falls will help to decrease the initial risk of falling.
Some steps to take to help prevent osteoporosis are:
- Exercise – especially weight bearing exercises to help build bone density
- Limit alcohol intake and avoid smoking
- Eat a diet rich in calcium and vitamin D – Ask your doctor if you should be taking calcium or vitamin D supplements
Screening for osteoporosis can be difficult due to the tests that are required for diagnosis. Individuals with disabilities may not be able to sit in the required position to obtain x-rays or may have a hard time lying still for the amount of time required for the tests. Primary care physicians need to be educated to screening alternatives such as ultrasound, and the importance of prioritizing prevention methods for individuals with disabilities.
Check out The Arc’s HealthMeet page for more information relating to health and wellness.