60th Anniversary Marks Milestone for The Arc of New Mexico

How Diversity is Strength at The Arc of New Mexico

There were many reasons to celebrate at The Arc of New Mexico State Annual Conference in June. Balloons and a bedecked cake displaying “60 years” were visible reminders of how far they’ve come.

Randy Costales, Executive Director of The Arc of New Mexico, says that in a state with a variety of cultures, languages, and backgrounds, it can be difficult to meet the needs of each community. Although New Mexico has only one local chapter The Arc of New Mexico has established Statewide Advocacy Network that includes the local chapter, a southern office and several home offices throughout the state. Over time he has found that opening several home offices throughout the state helps cut costs and provide better services.

“We have to be able to respond to the needs of all the citizens of New Mexico that have I/DD regardless of their age, ethnicity, or background,” said Costales.

The Southern New Mexico office was established 15 years ago to provide services to Dona Ana County, one of the poorest counties in New Mexico. A majority of the population is Hispanic and all staff are bilingual. A key to the success of this office is having employees from the area who can understand the needs of that region. Other offices have been established in Santa Fe, Silver City and soon in Roswell.

In another region of the state The Arc of New Mexico provides funding to The Arc of San Juan County, near the Navajo Nation, to provide advocacy. Advocate Dolores Harden, an employee of the local chapter, is known for her ability to relate with the people she serves on a personal level. Harden, who has two sons with intellectual and developmental disabilities (I/DD), visits and serves individuals and families at their homes and is also involved in a self-determination program for people with Down syndrome. Costales says that her work has been integral to The Arc’s success in New Mexico.

“She is a quiet, unassuming woman who is one of the most effective advocates I’ve ever seen,” said Costales. “Because of her, we have reached more people.”

Thanks to the Isabel Gonzales Trust established in 2010, The Arc of New Mexico is able to provide special services and support for individuals with Down syndrome and their families. The Arc of New Mexico has used funds to provide person centered planning for people with Down syndrome and their families as well as stipends to attend national and state conferences.

“We’re very appreciative of the partnership with the national office,” said Costales of this joint venture of The Arc of New Mexico and The Arc’s national office.

There are many areas of the country with diverse populations and thanks to a grant from the MetLife Foundation, The Arc is launching a new diversity initiative to make programs and services more accessible to those diverse communities. The Arc’s national staff looks forward to learning from chapters with rich diversity like The Arc of Mexico, and hopes other chapters will find inspiration from all this state chapter has accomplished.

With 60 years of experience, the organization looks to the future of service for individuals with I/DD in New Mexico. Lessons from the past will ensure many future successes and growth for this powerful chapter of The Arc.

“What I love about my job is the diversity of the people we serve,” said Costales. “Each county and community is different.”

Reflecting on Wings for Autism

By Sylvia Fuerstenberg, Executive Director of The Arc of King County.

Wings for Autism event registration

Wings for Autism took flight at SeaTac Airport, and it was a great success. I am so grateful for all of the families who took part in our launch, as well as the many volunteers who made the event a success. The commitment of The Port of Seattle and Alaska Airline is phenomenal. They are single minded in making travel inclusive for everyone. The TSA even made going through security a positive experience. When that is true, you know that everyone was committed! Although I could say a lot more about the event, I would rather let some of the parents and event partners tell you about their experience.

From Lisa Okada Visitacion, Mom:

“Phenomenal event. Increasing awareness and understanding. Building confidence and skills. Giving families hope. These are just a few thoughts I had about the Wings for Autism event yesterday. Kelli (and all the other participants) did such an amazing job. Many, many thanks to all the volunteers (there were many!) and staff at The Arc of King County, Alaska Airlines, TSA and the Port of Seattle. We will remember this experience forever and will most likely be flying Alaska Airlines when we travel by air. (I wonder if we can we take along a few of the volunteers, too?!?!)”

Wings for Autism pilot & child

From Jacki Jones Chase, Mom:

 “We got in the plane and they taxied it all over the airport runways. Then they stopped and let the kids, and adults, go check out the cockpit and bathrooms – they really put on an awesome event for kids with Autism!”

Wings for Autism pilots

From Jennifer Wade, Mom:

 “From the moment my family arrived at the airport, there was a friendly, smiling person with a Wings of Autism T-shirt on, guiding us along our way.   Every step of the process we were assured, explained the process and every attempt was made to ensure we were comfortable,  our questions answered and made to feel at ease in what is potentially a stressful situation for any parent /caregiver, taking a child on a flight. A special thanks to our pilot Mark who walked thru the entire waiting area talking to each family, meeting the kids, shaking hands and relaying his own personal story and why the event was so important to him. Having a child with special needs I’ve learned that it’s the support of family, friends, specialist and complete strangers willing to share their own insight and compassion that keeps our momentum going onwards on the path of progress and potential.”

Wings for Autism participant

Ray Prentice, Partner at Alaska Airlines:

“I didn’t realize until this event that a little bit of additional training and guidance, combined with our great caring employees, could totally change people’s lives. Speaking on behalf of Alaska Airlines’ volunteers I can openly share that we had a blast.  We felt a close connection with everyone at the event.”

Wings for Autism participants 2

From Sue Hanson Smith, Partner at The Port of Seattle who traveled to Boston to learn about the event and inspired us to bring it to Seattle:

“Thank you for all for pulling off a spectacular, in some cases, a life-changing event. I am so proud to be part of such a well-organized, energetic, and fun-loving team of professionals! The Arc of King County rocks! Without you we would not have had the families and the special kids to learn from.

Without Alaska Airlines we wouldn’t have been able to provide the “life-changing” experience. Thank you so much for your flexibility and your generosity in providing the airplane experience and memories to these selected families and their children. The t-shirts were the best!

And…TSA was outstanding in their ability to provide an easy, pleasant experience to the families and their children. From all the comments I heard, the first Wings for Autism at Seattle-Tacoma International Airport was a great success and it’s because of all of you.”

Wings for Autism participants

A Chapter of The Arc Promoting Health and Nutrition in Schenectady County, New York

Know Grow Eat participants A few years ago, Schenectady County Public Health Services and Schenectady Arc formed a unique partnership to address the high rates of chronic disease and obesity among people with I/DD in Schenectady County through the Strategic Alliance for Health. Schenectady Arc a  provider of residential, vocational, clinical, and adult day services in New York State’s Capital Region, recognized that among its 1,480 participants, nearly 10 percent were diagnosed with cardiovascular disease, obesity, or diabetes and wanted to do something to address the needs of those they served.

While nationally-based research showed individuals with I/DD were more prone to incidence of chronic disease, Schenectady Arc had confidence that they could help their participants by improving their diet and educating them about healthy eating habits. Further research found that children who participated in a “seed to table” nutrition education program tended to increase their consumption of fruits and vegetables. Through this program, children participated in a variety of regularly scheduled activities such as vegetable taste-testing, hands-on gardening, and recipe preparation. Based on these studies, Schenectady Arc created Know, Grow and Eat Your Vegetables, a garden-based nutrition education program for people with I/DD. The agency’s horticulture coordinator oversaw the new program which was located at Schenectady Arc’s commercial-sized greenhouse in Rotterdam, NY. The coordinator assessed awareness of and preference for 15 vegetable types and, worked alongside 70 participants to plant and cultivate seedlings.

Know Grow Eat participantsWhile the vegetables were being grown, nutrition educators from Cornell Cooperative Extension of Schenectady County (CCESC) conducted a six-week program adapted to the specific needs of individuals with I/DD. This training provided participants and staff with strategies regarding healthy meal preparation practices and how to incorporate vegetables into daily meals and snacks.

This remarkable program continues to flourish and provide nutrition and education for individuals with I/DD in Schenectady County. Since the program began, participants have harvested approximately 1,000 vegetables. Vegetable packets, along with recipes, were distributed for consumption in group home or family home settings. Last year, this program was named by The National Association of County and City Health Officials (NACCHO) as a model practice and an implementation guide can be found on the U.S. Centers for Disease Control and Prevention website! Also, during The Arc’s national convention, Schenectady Arc and NACCHO presented together, giving chapters of The Arc the opportunity to learn from the success of this program.

The Arc Maryland Responds to Governor’s Executive Order to Establish Commission

Governor O’Malley Forms New Commission for Effective Community Inclusion of Individuals with Intellectual and Developmental Disabilities

ANNAPOLIS, Md.The Arc Maryland responds to Governor O’Malley’s Executive Order to establish the Maryland Commission for Effective Community Inclusion of Individuals with Intellectual and Developmental Disabilities. The Executive Order was created as a response to the tragic death of Frederick County resident Ethan Saylor, who had Down syndrome, in an effort to improve the training of law enforcement, paramedics and other first responders to better respond to people with intellectual and/or developmental disabilities.

In a press statement issued on February 21 (http://blog.thearc.org/2013/02/21/the-arc-responds-to-the…), The Arc Maryland responded to the tragic death of Robert Ethan Saylor: “Sadly, this tragedy could have been prevented…with proper training these officers would have realized there was a better way to work with Robert, as opposed to simply using force – an extreme and unnecessary reaction. This is a moment for us not only to mourn, but we must also learn from this tragedy and encourage proper training in our police departments,” said Kate Fialkowski, Executive Director, The Arc Maryland.

Individuals with intellectual and/or developmental disabilities (includes children, youth and adults with disabilities such as autism, cerebral palsy and Down syndrome) represent 3% of the population living in our communities as valuable contributing citizens. Individuals with intellectual and/or developmental disabilities (I/DD) are disproportionately victimized and disproportionately suspected of criminal activity—7 times more likely to come in contact with law enforcement than the general population. Individuals with I/DD often have co-occurring medical conditions such as neurological, cardiac, or respiratory conditions that make them more vulnerable in stress situations. The use of prone restraints – which is associated with increased risk of asphyxia and aspiration – can result in fatality. (National Review of Restraint Related Deaths of Children and Adults with Disabilities: The Lethal Consequences of Restraint, 2011).

Carol Fried, President of The Arc Maryland said: “It’s our collective responsibility as a community to understand the unique gifts of our fellow community members, but also to ensure that our protective service systems are savvy in ensuring safe treatment of a vulnerable population.”

A comprehensive approach is necessary and The Arc Maryland applauds Governor O’Malley for establishing this Commission. It is critical that our state develops policies and practices for law enforcement and first responders, that there should be a coordinated and comprehensive strategy for response, and all first responders should have appropriate training to effectively respond to individuals with I/DD in a variety of public safety situations.

In its continuing efforts to build awareness and improve community inclusion, The Arc Maryland is scheduled to conduct an introductory training entitled “Law Enforcement Response to Developmental Disabilities” at the Governor’s Fall Criminal Justice Conference on October 10, 2013. In an “Ask Me” format, individuals with developmental disabilities will lead this training.  “The Arc has a long history of criminal justice and first responder training on a national level. We’re happy to contribute our extensive experience in any way that can benefit the state and individuals with intellectual and developmental disabilities and their families,” said Ms. Fialkowski.

Brazilian Educators visit The Arc Baton Rouge Children’s Services

By Barry Meyer, Executive Director of The Arc Baton RougeThe Arc Baton Rouge and Brazil exchange participants

Earlier this month, we were thrilled to welcome five visiting educators from Brazil to The Arc Baton Rouge Children’s Services. The visitors came to Louisiana through a program of the U.S. Department of State. The guests joined us from five states across Brazil and included four Secretaries of their state’s Department of Education and one Deputy Secretary.

We were selected because our programs help create inclusive preschool, child care and educational opportunities for children with disabilities. One of the State Department’s specific objectives was to “Expose participants to the ways in which private sector entities are engaging with public sector partners in support of educational programs.”

Between Heidi Shapiro, Children’s Services Social Worker, two interpreters, and me, we presented four programs of The Arc Baton Rouge Children’s Services:

  • Early Childhood Inclusive Program
  • The Preschool and Child Care Training and Technical Assistance Project
  • Parent Supports and
  • School Age Supports

Using a multi-platform approach including PowerPoint presentations, multilingual handouts, informal discussion, and a Q and A session, the guests learned how The Arc Children’s Services staff works with public school administrators, principals, and teachers to help them restructure programs. Additionally, they learned how our staff serves as mentors and coaches to support teachers to include children with disabilities in regular classes. They also saw how a similar training and on-going mentor/coaching approach worked in preschool and child care settings.

In the end, the participants understood that training parents and care givers to be their child’s strongest advocate was critical to ensuring success in transitioning to public school systems. They also left with the knowledge that an organization that is not a direct stakeholder, such as The Arc, can provide that training to individual parents, combine it with mentor/coaching of  teachers and create opportunities for individual children as well as real systems change.

I feel that The Arc Baton Rouge was very fortunate to have this opportunity to demonstrate to our Brazilian guests how we at the grass roots advocacy and service level incorporate our core values in a very real world way!

The five education officials concluded their visit with a brief tour and overview of The Arc Early Head Start program. The visiting Brazilian educators were:

 

Ms. Hortencia Maria Pereira ARAUJO

Deputy State Secretary of Education, State of Sergipe

 

Ms. Maria Izolda Cela De Arruda COELHO

Secretary of Education, State of Ceará

 

Ms. Maria Nilene Badeca Da COSTA

Secretary of Education, State of Mato Grosso do Sul

 

Mr. Claudio Cavalcanti RIBEIRO

Secretary of Education, State of Pará

 

Dr. Herman Jacobus Cornelis VOORWALD

Secretary of Education, São Paulo State

Highlighting the Talent of Self-Advocates in Evansville, Indiana

By Denise Seibert, Director of Development
Evansville Arc

Last month, Evansville Arc was proud to partner with The Arts Council of Southwestern Indiana to host our first ever art show in The Arts Council’s Bower-Suhrheinrich Foundation Gallery located in downtown Evansville, Indiana.  The show opened on May 10 and runs through June 12.  The show features fabric mosaics that have been completed by individuals served by our chapter, along with volunteers and staff of Evansville Arc.

The project began in 2009 as a one-time project to engage community volunteers with the clients served in our Adult Day Services program.  However, the project was such a success that we have continued work on the mosaics thanks to the help of local vendors, such as fabric stores and interior design professionals, who generously donate wall paper samples, fabric samples, scrap materials and other items.

I believe our President,  Deidra R. Conner, described the project best when she said “This project truly demonstrates that the love of art is universal and that everyone – regardless of physical or cognitive abilities – has talents or gifts that should be shared with others.”

Description of pieces

Freedom of Religion“Freedom of Religion.”

This mosaic represents the right for all people to practice their religion or beliefs. Seclusion of individuals with disabilities in the past and societal attitudes impeded their ability to express and practice their religion or beliefs. Many individuals with intellectual and/or developmental disabilities indicate that being able to participate in worship services of their choosing greatly enhances their lives.

Beverly attended church with her sister before her sister passed away. With supports, Beverly is now able to attend religious services. ““I’m happy to go to church.  I haven’t been since my sister died.  I really miss the music & want to sing.” – Beverly W.


Freedom of Expression“Freedom of Expression.”

This mosaic represents the right to speak openly and fully without fear of undue criticism or punishment. Too often, persons with disabilities have not been given the opportunity to speak for themselves. Due to social and cultural attitudes, their opinions were not always given the same value as those without disabilities and their efforts to speak up were stifled. Individuals with disabilities have much to say and are encouraged to speak up about issues that impact their lives and their community.

“I am able to speak my mind and follow what’s in my heart”- Matt B


Right to Access“Right to Access”

This mosaic represents the right of freedom of movement in the community. Freedom of movement is two-fold: being allowed to be a part of one’s community and being able to access it. In the past, persons with intellectual and/or developmental disabilities were encouraged to be placed in institutions and hidden from the rest of society. They were not able to attend public schools and take part in the daily activities such as employment, shopping, using recreational facilities, etc.  Prior to the Americans with Disabilities Act (ADA) even if they were allowed to participate, many individuals with disabilities were limited due to physical or other barriers. Today we are seeing more and more individuals with disabilities contributing to their communities as employees, volunteers and taxpayers as they are given opportunities and reasonable accommodations.

“The best thing about getting my job is that I’m earning my own money and I now have responsibilities. Having responsibilities is the important thing, like showing up for work and being on time.” – Nathan B.

“Just Be”: Dancing Knows No Disability

Shannon and Tim QuinnBy Shannon Quinn, Guest Blogger

Shannon Quinn is a dancer and teacher at Dance Place, a nonprofit arts campus in Washington, D.C. In April, her company, ReVision dance company will perform “Just Be” in honor of her father; the late Timothy J. Quinn.  The April 27 performance includes a VIP reception with proceeds benefiting The Arc. Tim Quinn was Executive Director of The Arc of the Northern Chesapeake Region from 1990 to 2010. Tim was a visionary leader and advocate for people with disabilities, respected nationwide for his efforts. During his time with The Arc, his chapter was recognized for the quality of its services and commitment to personal empowerment and inclusion. And, Tim personally received the National Conference of Executives of The Arc 2009 Executive Excellence Award.

Growing up with my father, Tim Quinn, I was inspired from an early age to work with individuals with intellectual and developmental disabilities. I would travel every summer with my dad to The Arc conventions, and tag along when I could in his office at The Arc Northern Chesapeake Region. I was inspired by his kind heart and genuine interest in every person he came into contact with.

Teaching has always been a passion of mine, and since my father’s passing, I became more involved in teaching dance to children and adults with I/DD. I walk away from each class uplifted and focused on how individuals no matter what their abilities are, can be impacted by dance.

As my work with individuals with I/DD increased over the past two years, I had some serious thoughts about inclusion and how the word inclusion shouldn’t really even exist. Every human being has the right to live a fulfilled engaging life, no matter what their ability, and that should be a given.  As an artist, I began to form these thoughts into movements and from there, the piece “Just Be” was born.

In the work, I explore subjects like support and “people first language.” What does it mean to support individuals with I/DD and then in return, how does that support translate into those individuals supporting themselves? The piece also focuses on people first, rather than labeling by an individual’s disability. I want my message to be positive and uplifting to every individual. Dance is universal and has no limits. This project has reinforced my belief the dance can bring people together, no matter their age, background, ability, experience, profession or skill level.

On Saturday, April 27, the ReVision dance company will perform “Just Be” and host a VIP reception organized in partnership with The Arc of the United States with a portion of the proceeds benefiting The Arc. The performance features children with disabilities from the Mamie D. Lee School who were taught by instructors from ReVision dance company. Also, the performance includes students from The Arc of the Northern Chesapeake Region shown on film. I hope you’ll be able to join us at Dance Place and help celebrate my father’s legacy to celebrate and love ALL people. Find out more about our dance company and this performance at www.danceplace.org.

Helping Dreams Come True While Helping the Environment

eRecycling at The Arc of Clarion and Venango Counties Inc.By Caleb Wilson, Vocational Director, The Arc of Clarion and Venango Counties Inc.

A valuable lesson we have learned through our efforts of connecting individuals with intellectual and developmental disabilities to community-based employment opportunities is that the idea of creating a business around someone’s interests and abilities is not commonplace. Some individuals have always dreamed of being their own boss and owning their own business.  Keeping that in mind, The Arc of Clarion and Venango Counties started assisting individuals in creating their “Dream Job” of owning their own business.

The Arc and Walmart Foundation’s eXplore eRecycling Initiative has made it possible for us to assist a small group of individuals experiencing disabilities with starting a business that helps residents and community businesses/organizations recycle their old electronics in an environmentally sound way. From the development of the business plan and policies, The Arc eRecycling of Clarion and Venango Counties has truly been an effort led by these employees.

To comply with Pennsylvania’s Covered Device Act, we have held two free e-waste drop off days in both Clarion and Venango Counties.  These events brought in over 4,000 pounds of old electronics that do not work or that people simply do not wish to own anymore.   Additionally, several local city offices have started referring their residents to The Arc eRecycling for their needs and this has given us the opportunity to recycle hundreds of computer monitors and televisions.  With a motto of “We take anything with a plug” each day customers have the ability to drop off any electronic.  In order to meet the interests of some employees, The Arc eRecycling of Clarion and Venango Counties started creating catalogs to resell old electronics that are still in working condition.  This not only allows the business to help the environment but to help individuals find reasonable priced electronics.

LifeCYCLE Project – Changing Lives and Improving the Environment

By Greg Gates,  The Arc of Lee County / Kreider Services

From the outside, 629 Palmyra Road Dixon Illinois looks like a facility that would be home to a manufacturing operation. Walking inside the front door reveals an environment that is changing lives.

The greater vision for this recycling site, as explained by Jeff Stauter, our president and chief executive officer of Kreider Services, is to cultivate an economic development incubator and to offer people with disabilities the chance of being employed by the business and perhaps serving as owners of their own businesses.

“Think of it……why place limits on what people with disabilities are able to do,” asks Stauter. “Unfortunately they’ve already had enough barriers placed around them. We know that we have persons who are quite capable of doing some great things if they are given the opportunities to do so.  This new operation will recycle electronics, cardboard, plastic, food scraps, polystyrene and office paper,  and my hope it will serve as a model for others to pattern their operation after,” adds Stauter.

Current national figures show that 80 percent of adults with intellectual and developmental disabilities are not  employed.  The “LifeCycle Project” as it has been named by Secure Recycling Services will create 20 jobs initially  for persons with disabilities. The persons hired for these jobs will be trained by project staff on collecting, dismantling, sorting, and inventorying electronic waste.  For instance, they are learning how to take apart a CPU, power supply, keyboards, or computer mice.    And others will be dismantling power cords for the copper wiring inside.

At Kreider Services, we understand the concern for the individuals with an intellectual or developmental disability who aren’t receiving funding assistance from the state anymore. They’ve fallen through the cracks……at the same time, they haven’t yet been developing the skills that will help them find the sustainable jobs they need.

As the electronic recycling efforts are expanding at our Palmyra Road location, the lives of people with disabilities are being changed indeed.  In the transition from working in a sheltered workshop environment to taking on jobs at the recycling site, at the start of the new year, five people with intellectual and developmental disabilities will be working alongside “regular” employees at the SRS division.   After talking with Andy, one of the new workers, an incredible statement was made.  “My family is so excited for me to get this job…….. I’m no longer a ‘client’,”  he voiced with the most joyful pride. To hear his enthusiasm and to realize the deeper meaning of that simple statement is truly monumental, don’t you think.

Thanks to a project of The Arc and the Walmart Foundation, the eXplore eRecycling Initiative has provided funding to ten grant recipients across the nation of which Kreider Services/The Arc of Lee County was one. The local project has allowed for the expansion of Kreider Services’ existing electronics recycling operation and has provided paid employment for adults with intellectual and developmental disabilities like Andy.

President of our local Arc chapter, Lee County Illinois, Jill Polivka had commented, “This is a great opportunity for individuals with disabilities in our community.”   Our partnership with The Arc will help make our recycling efforts even stronger.   The recycling industry is an open market of opportunity; it’s the perfect avenue to find the much needed employment potential for not only people with disabilities …but for our community in general.

Beyond the electronics recycling, the LifeCycle Project will help educate school children and the general public about the proper disposal of their computer, television or similar equipment.  Recycling Coloring and Activity books will be distributed to local grade schools. We will also be hosting a gallery opening at The Next Picture Show art gallery of original artwork created from recycled electronic material. Plans also call for working directly with local Walmart stores on educating their patrons on how to recycle their used electronics by having a number of individuals demonstrating the “de-manufacturing” of the outdated electronic equipment.

Need has always been considered the mother of invention… in this trying economic climate… what an exciting potential it may reveal. We shall live and learn as we move forward. Reduce. Reuse. Recycle.

For additional information, please visit the project’s website here.

Chapters of The Arc coming together in the aftermath of Hurricane Sandy

Claiming more than 100 lives, leaving millions without power, and destroying hundreds of thousands of homes, Hurricane Sandy will not soon be forgotten. The total cost of damages in New York and New Jersey alone will likely total more than $50 billion. Many chapters of The Arc are still coping with the aftermath of this treacherous storm.

While tragic stories filled media reports, inspiring tales of communities coming together seemed to be overlooked. The Arc’s network includes more than 700 chapters in 49 states across the country, with more than 70 in the hard-hit states of New York and New Jersey. But chapters in affected states were not alone as the storm approached.

Inspiration in New Jersey

In New Jersey, chapter staff was rushing home from The Arc’s National Convention in Washington, DC to prep for the storm. After previous storms, chapters had plans for disaster situations and specialized training programs on emergency preparedness had taken place. While chapters were concerned about all the individuals and families they support, a priority for many was to educate individuals with I/DD living in the community about what to do and who to contact in an emergency.

The selflessness and dedication of the direct care support professionals throughout the state was truly inspiring. They went above and beyond what was expected. One employment support worker lost her home during the hurricane. Despite her loss, her priority remained locating the young man with I/DD she worked with in an evacuation shelter, and making sure he would be able to go back to work once the business he worked in was reopened. Not once did she mention her own loss; her main concern was making sure that one young man didn’t get lost in the system. Her work paid off and she was able to move him into temporary housing with friends and even contacted his employer to make sure his job was secure. These stories of compassion and generosity are plentiful in The Arc’s community.

Many chapters suffered power outages and flooding, but The Arc of Monmouth in New Jersey was one the hardest hit. One building, where day programs were held, was destroyed. These programs not only allowed individuals with I/DD an opportunity to work and participate in the community, but gave parents the ability to work while knowing their loved one was safe. The Arc of Monmouth was not willing to give up on their community and the hundreds of families they serve, so they set up a make-shift center in their main office. Pulling together staff and volunteers they have been able to host a variety of mini-seminars and workshops – no small feat in an area severely affected by the storm.

Resilience in New York

In New York, similar stories of inspiration can be found. Some of the most compelling stories come from NYSARC, Inc., the New York State Chapter of The Arc. Their New York City chapter, AHRC NYC, knew the key to survival was preparation. Learning from previous experiences and storms, they knew what had to be done to ensure that they could continue serving their communities even if they ended up bearing the brunt of the storm.

Despite the amazing preparation throughout New York, the aftermath of the storm did pose problems. Accounting for all individuals they supported in many urban areas proved difficult, but chapter staff used all available resources to account for everyone. In spite of severe flooding and power outages in the Wall Street area (where AHRC NYC’s main office is located), staff was in the office immediately after the storm sweeping water out so that they could get back to work. Through teamwork they overcame the barriers to getting their office functioning again.

After dealing with the immediate crisis, the staff at AHRC NYC knew they had to ensure that everyone was paid on time so that they could cover personal expenses they incurred from storm damage.  With no power in their main office, staffers carried a 300-pound piece of equipment down 13 flights of stairs, and transported it to an area where there was power to get paychecks out on time. AHRC NYC employs 3,000 staff who fan out across the city providing services and supports to more than 15,000 people with I/DD.

The sense of community was powerful, and AHRC NYC truly exemplified it in the aftermath of the storm. They shared their limited resources, including gas, with other chapters to make sure the work of The Arc could continue.

We at the national office commend The Arc of New Jersey, NYSARC, Inc., and all chapters that were affected by this storm for their amazing work and dedication. We ask any chapter affected by the storm to contact the national office if they are in need of assistance, or wish to share their story with us.